Posts Tagged ‘advocacy’

CALLING ALL RACIAL MINORITIES! No New Lupus Drug in HALF A CENTURY???!!!!!

December 3, 2008

What does “No New Lupus Drug in 50 Years” mean to you? Do you have lupus? Do you love someone with it? Did you love someone you lost to lupus?  What can you do?

And WHY has there been such a shameful lack of research??? Interesting that the majority of victims are minority women…blacks, Asians, Hispanics…. I can’t help wondering how much faster they’d be moving if the majority of victims were white, upper class men… The YouTube I’ve inserted here talks all about the difficulties of research due to the complexity of the disease and the genetic variations of the patients. But still…you have to wonder…

The Lupus Foundation of America invites you to share your story with Congress. FIGHT for more money for research!

Share photos, personal stories, put faces and details on the stats they don’t even have.

God helps those who help themselves. LET’S ALL DO IT! LET’S FIGHT FOR OURSELVES! Go to the LFA  website (link below) for details on how to make your voice be heard in Congress.

I know I will.  C’mon guys. We are all we have. Lets stick together and do this together. Look what Rosa Parks, one woman, was able to accomplish with a single act.

From the LFA Website:

November 20, 2008 marked the 50th anniversary of the last time the U.S. Food and Drug Administration (FDA) approved a treatment for lupus. Lupus Foundation of America (LFA) Medical Director Dr. Joan Merrill and LFA Medical-Scientific Advisory Council Chair Dr. Gary Gilkeson discuss this urgent issue and what LFA has been doing to bring down barriers to lupus drug development.

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Jennifer Hudson “Domestic Issues”

October 25, 2008

By now we all know that Jennifer Hudson’s mother and brother were recently murdered. The media, noting that there is a male suspect,  reports a history of “domestic issues”. 

That phrase, or its twin “domestic dispute” is a  terribly  insidious euphemism. It suggests an issue or dispute over who left the socks on the floor or disagreements over household operations. When you hear it often enough in the news, the real meaning becomes so diluted that its impact upon society  becomes diluted.

For purposes of my post this morning, let me give you the exact definition I found at good old dictionary.com: 

euphemism – the substitution of a mild, indirect, or vague expression for one thought to be offensive, harsh, or blunt.

Of course domestic violence is what’s really being substituted here.  Bland domestic disputes don’t result in a woman calling the police for help. Bland domestic disputes don’t invoke public outrage or action.  I worked for two years in an agency for battered women. Speaking from first hand experience, here are what “domestic disputes” and “domestic issues” look like. And yes, these images are offensive, harsh, and blunt.  Just like the domestic violence that was committed against women such as these. 

 

One out of every four women is assaulted by an intimate partner every day. We need more public awareness, education, advocacy and funds to help a cause much closer to home than we might think. Domestic violence crosses all socioeconomic lines.  It could happen to you, your sister, your mother, your daughter. It’s about time the legal system stopped protecting the public from offensive, harsh reality and started protecting the victims of the offensive, harsh reality.
If you need help, you can call the National Domestic Violence Hotline at 1-800-799-SAFE.