Archive for the ‘youtube’ Category

There’s More to Lupus Than You Know

May 15, 2009

Personal Stories of Lupus

May 10, 2009

Its Mother’s Day here in the USA.  I’m a mother home very sick with a lupus complicated drug reaction.  Since this is Lupus Awareness Month, I hope to blog  something every day about lupus in order to increase awareness. If you want to help me, please share the info and links on your blogs. If you are a woman, or love someone who is, you really  need to know more about the effects of this devastating disease:

Personal Stories of Lupus

Baby V

March 19, 2009

(12 week sonogram found on youtube- NOT OUR BABY!)

I cannot even begin to describe what an experience it was to see the baby on the sonogram. I stood next to my son-in-law, my daughter of course on the examining table, holding her husband’s hand, as we watched in awe. That was no flat, lifeless screen as shown in the photo on my previous post. It was like an in utero video. At twelve weeks  he was moving around, very active, and even sucking his thumb! There we were, three adults, dumbstruck.  “Oh wow!” was pretty much the extent of the conversation from all three of us while the tech did her thing. My daughter’s “oh how cute!!!!!” periodically punctuated the conversation. She, as we all did, really melted when we saw the thumb sucking. That and our repeated question “is it a boy or a girl????”   The tech kept demurring that she couldn’t be certain at twelve weeks, but finally, having found the penis, she announced “Its a boy!”

We all exclaimed in joy! My daughter was no longer carrying an “it” but a male baby. From the moment I heard it, I no longer felt merely the excitement of the pregnancy. Now he had an identity.  I felt love for him . For that tiny little guy so active inside his mom. For  Baby V, already named before his mom even got pregnant.

At twelve weeks, this baby was no future unknown. This baby was now.

And I feel so very honored that they invited me to participate in this intimate, joyous stage of their journey.  I love all three of them with all my heart.

Soul Sketching

February 13, 2009

 

This wonderful collaboration grew  from my two friends at Cafe Crem,  Susan Cornelis and Kevin Moore.  There’s so much more to discover about their talent:

Artist: Susan Cornelis

 Website: Imagine with Art

Art Blog: Susan’s Art and Sketchbook Blog

Composer and Musician: Kev Moore

Blog: GOODABOOM.COM

Blog: Cafe Crem

Coming to America

February 8, 2009

For my friend Sanityfound,  because she really is coming to america!

 

COMING TO AMERICA

Far
We’ve been travelling far
Without a home
But not without a star

Free
Only want to be free
We huddle close
Hang on to a dream

On the boats and on the planes
They’re coming to America
Never looking back again
They’re coming to America

Home, don’t it seem so far away
Oh, we’re travelling light today
In the eye of the storm
In the eye of the storm

Home, to a new and a shiny place
Make our bed, and we’ll say our grace
Freedom’s light burning warm
Freedom’s light burning warm

Everywhere around the world
They’re coming to America
Every time that flag’s unfurled
They’re coming to America

Got a dream to take them there
They’re coming to America
Got a dream they’ve come to share
They’re coming to America

They’re coming to America
They’re coming to America
They’re coming to America
They’re coming to America
Today, today, today, today, today

My country ’tis of thee
(Today)
Sweet land of liberty
(today)
Of thee I sing
(today)
Of thee I sing
(today)

(today)

(today)

(today

Words on Women & Strength

January 9, 2009

Stand by Me: A Song from Around the World

December 11, 2008

How BEAUTIFUL is this?

 

OJ Didn’t Mean It

December 10, 2008

Yeah right. The judge in this case is on record as saying that she’s not here for paybacks…But from a non legalese standpoint, paybacks are a bitch. 🙂

CALLING ALL RACIAL MINORITIES! No New Lupus Drug in HALF A CENTURY???!!!!!

December 3, 2008

What does “No New Lupus Drug in 50 Years” mean to you? Do you have lupus? Do you love someone with it? Did you love someone you lost to lupus?  What can you do?

And WHY has there been such a shameful lack of research??? Interesting that the majority of victims are minority women…blacks, Asians, Hispanics…. I can’t help wondering how much faster they’d be moving if the majority of victims were white, upper class men… The YouTube I’ve inserted here talks all about the difficulties of research due to the complexity of the disease and the genetic variations of the patients. But still…you have to wonder…

The Lupus Foundation of America invites you to share your story with Congress. FIGHT for more money for research!

Share photos, personal stories, put faces and details on the stats they don’t even have.

God helps those who help themselves. LET’S ALL DO IT! LET’S FIGHT FOR OURSELVES! Go to the LFA  website (link below) for details on how to make your voice be heard in Congress.

I know I will.  C’mon guys. We are all we have. Lets stick together and do this together. Look what Rosa Parks, one woman, was able to accomplish with a single act.

From the LFA Website:

November 20, 2008 marked the 50th anniversary of the last time the U.S. Food and Drug Administration (FDA) approved a treatment for lupus. Lupus Foundation of America (LFA) Medical Director Dr. Joan Merrill and LFA Medical-Scientific Advisory Council Chair Dr. Gary Gilkeson discuss this urgent issue and what LFA has been doing to bring down barriers to lupus drug development.

I Caught Amber’s Cold

December 1, 2008

 

Sniffle, sniffle, SNEEZE…..Sniffle, sniffle, SNEEZE 😦

We don’t live in the same cage, but somehow I managed to catch it…. Good thing I love ya, Amber.

Baby Laughing at Wii

November 7, 2008

Ok, this may be a sign of my obsession with wanting a grandchild, but I ask you….can you watch this and NOT laugh just hearing him? I hope this brings a smile, or a laugh, to you today.

 

Charlie Bit My Finger – Again!

November 1, 2008

Having a bad day? Try watching this 🙂

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Great Parenting DVD

October 29, 2008

A couple I’m working with blew me away with a DVD they have of a pediatrician who teaches mirroring to young parents. Mirroring is literally just that, imitating the communication of the child so that he or she feels you’re speaking their language. The toddler then  feels understood, and cooperative.  He is Dr. Harvey Karp – the DVD is The Happiest Toddler on the Block.

Among other things he teaches mirroring of facial expressions, body language and sounds. His basic tenet is don’t talk to toddlers like they’re little adults because they’re not; their language skills are far more primal.  You have to literally  get down to their level. He also has another one, The Happiest Baby on the Block which I have not yet reviewed.

The results looked startlingly effective to ward off and/or stop tantrums.  His website is www.thehappiestbaby.com. I can tell you one thing for sure. When my kids present me with grandchildren, this will be one of the first gifts I give them.

Here he is in action:

 

My Daughter’s Wedding & The Notebook

October 9, 2008

Oh, what a wedding it was! Everything and more than we’d dreamed of since she was five, when I caught her in our yard literally kissing frogs because, “I have to find my prince, Mommy.” She apparently squeezed one frog so ardently that she frantically presented it to me because she…well….she couldn’t wake it up.

I raised my princess to be strong, assertive, and independent. She did not need Prince Charming to save her or rescue her, but she did find a Prince Charming who is fairy tale handsome, protective, nurturing, kind, strong, gentle, and  generous.  (And yes, also an alpha male!)

Oh, what beautiful babies they will make!

They’re twenty eight, have been together for seven years, and lived together for the past two. So her new husband already felt like family, it seemed to me. Yet witnessing for them as they signed their marriage license, and watching them go through the ritual in the church, somehow made me love him differently. Because now he IS family. He will be the father of my grandchildren. He will take care of me when I’m old, if I should need it. He’s that kind of man, a good man. And so is his family. Our tiny family, long since dwindled from what it once was,  has  somehow been blessed with in-laws who have already absorbed us into their tribe. We have long yearned for this void to be filled. 

They looked gorgeous. They looked madly in love, even after all this time.  They never left each other’s side but ate and danced and laughed the night away. Their song was “I Could Not Ask for More”  by Ed McCain.   But I found this one on YouTube sung by a female vocalist, with video clips from The Notebook, my daughter’s and my all time favorite romantic movie. The lovers here remind me of my new newlyweds:

 

 

I truly could not ask for more.

Lion/Human Reunion

July 31, 2008

This is sooo worth watching 🙂

 

I Will Remember You

June 23, 2008

A touching video produced by a daughter who lost her mother to lupus:

Lion YouTube

May 12, 2008

This is for cat people like myself, who find all the various species of felines to be fascinating.  Produced by National Geographic.

 

 

 

 

 

 

Fibromyalgia as Symptom of Hypothyroidism

May 4, 2008

Fibromyalgia: I’ve Now Joined the Club-Youtube

March 27, 2008

There is often an overlap between lupus, fibromyalgia and arthritis, and now that is happening to me. So now, me being me, you will be seeing articles, links, etc. on this “fun” diagnosis on here in addition to my lupus stuff. But since my medical conditions do not define who I am, mostly this blog will continue to be the usual bits and pieces.  My hands are hurting these days so I’m sorry if I’m not answering everyone’s comments. I do so appreciate them and will catch up when I am feeling better. In the meantime, carpe diem!…..Oh, I found a wonderful, touching YouTube about fibro by elainejamie :


End Domestic Violence

March 7, 2008

produced by mikrocritter on YouTube

A Cat Like a Dog – YouTube

February 29, 2008

Serious health problems? Watch & Listen to Etheridge!

February 18, 2008

Well this is the second time this mornng that my friend amberfireinus has inspired a post for me. She posted her favorite uplifting YouTube. Here is mine. Its wonderfully uplifting for anyone who has a serious health condition of any kind. Melissa's is cancer.

Kiss Me: Romantic Movie Montage from YouTube

February 14, 2008

A lovely little something for all of you for the V day. Though I was disappointed that Scarlett and Rhett weren’t included…must be an age thing….

Psychscribe Quote(s) #13

January 24, 2008

I needed some inspiration this morning, surfed YouTube, and really liked this by pokerworld.  Hope you do too.

This is Lupus: YouTube

December 19, 2007

Most people don't really undersand this disease, how prevalent and devastating it is. If you would like to find out how you can help, please click on the organization which produced this YouTube:  Lupus Foundation of America