Archive for the ‘personal’ Category

A True Confession About Friends

May 20, 2009

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Artist: Diego Rivera

 

As I get older, I’m becoming more and more of a loner.  That is to say, I prefer my own company to the company of others. Given the choice of a visit with a friend, or reading or writing or creating, I will always choose the latter.  I’m going to say what is true for me, even though it sounds awful. After about a half hour visit, I get bored. Yes. I get bored. Because my mind drifts away to my interior landscape from which my creativity springs, and I want to get back to it. To whatever medium I’m working in. I don’t want to listen very long to  somebody’s daily travails or about their their kids or daily lives.  I feel trapped,  a captive audience.  Phone calls are the same for me. Maybe even worse. Because they have to be returned if I want to have any friends at all.

So why do I want them, you may be asking yourself.  Well…because I love them! And I care about them. And when the chips are down, they’re there for me and I’m there for them.  I think maybe  its just that in this fifth decade of my life, my identity is morphing into an artist and I have no patience for daily minutiae.

Also, the more I think about it, a man would never even write this post or have these thoughts. Men don’t chat about their daily lives. Most of the ones I know are very much bottom line kinds of people. Phone calls serve a function, as in : where are we going and what time are we meeting? Men do things together. Women seem to talk about things more. …A cultural thing, I guess.

 How could Psychscribe admit to such mean thoughts? Because it is my truth. Does this sound really awful?

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Itching to Write A New Topic!

May 19, 2009

 

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Well aren’t you so glad that you didn’t get to Psychscribe’s site only to hear more of the same…after a while I bet you started to feel itchy yourself!

Well I’m cheerful today because I feel good and its a gorgeous day here where I live. Green, green everywhere and glorious sun already at 9 am, after a week of rain.   And our  rhodies are beginning to bloom.

So… other things I’m cheerful about….

1. My friend Sanity Found read my fable, What Witches Know, and really liked it.

2. I have this whole week off to recuperate, which I will do by making my jewelry and learning Photoshop elements.

3. I have discovered the joys of Polymer Clay.

4. My daughter is starting her 6th month of pregnancy.

5. Less than 3 months till my son’s wedding.

6. I joined Twitter just to see what it was all about (not much!) but now I have this whole list to add just to SAY something. Depth is discouraged on Twitter by limiting the amount of lines you can write. It IS supposed to be a good marketing tool though, which I want to use once I get my business with my sister up and running.

7. Life is once again interesting now that I’m able to look beyond the confines of my body.

8. Umm…that’s good enough, yes? I was actually sitting here for a moment trying to think of two more things to make an even 10…why I have no idea. Too many memes. 

Enjoy your day everyone!

Slowly Resurfacing

May 18, 2009

Well, finally no more itch, just extreme fatigue. I’m taking this week to recuperate and catch up on all the sleep I lost… I’ll be back, thanks for all the support, everyone….zzzzzzzzz

Lupus causing extended suffering

May 12, 2009

My previous post was tongue in cheek…but now, this is living hell…the constant itching is actually painful…dr has increased my antihistamine to the point that it knocks me out…when i wake up there is a 1 hour window (now) before i can take my next dose…i have to choose what feels like induced coma, or suffering…the lupus is making me suffer, exacerbating and extending the allergic reaction

Itching, Madness, and True Love (A Lupus Story in Disguise)

May 11, 2009

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4:00 a.m.  – A lupus story because its about my severe allergic reaction to a lupus drug, said reaction being amplified  because the lupus has joined  with the evil allergy forces to destroy the effects of a drug intended to help me.

This has been the most miserable week of my life-..i have not been able to do anything  but lie in bed with ice packs on me to relieve the itching – every itch  inch of my body- I wake up every 1.5 hours bz of the itch – i’m on steroids and antihistamines- my face is puffed up into a balloon – my ankle is just fractured but still a pain the in ass, i have to wear a brace with sneakers- i only stayed in the hospital overnight because the doctors said they really couldn’t do anymore for me and it would take 2-3 weeks to clear up! they warned that the rash would get worse before getting better, but they did NOT warn that the itch would apparently do the same – it feels like tiny little ants crawling around beneath the surface of my skin, occasionally nibbling at my blood vessels -so at 8 am this morning Alph and i will be parked on the dermatologist’s doorstep, the doctor who saw me in the hospital, for a re-evaluation – no appointment, just begging and if that doesn’t work demanding to be seen.

Alph has been wonderful through all this. Poor man. We have a health crisis every year. Truly. But this was the firat time he had to call 911 for me.  I was commiserating with how awful that must have been to hear me fall to the floor and then come running in to find me unconscious , staring blankly up at him as he tried to rouse me. He replied  in his best John Wayne voice, but seriously, “A man does what he has to do.”   For you kids too young to have ever heard of John Wayne, he was a tough guy movie cowboy, but a gentleman on the inside with a heart of gold.

He has never left my side. John Wayne bringing tea and cookies and pasta and comfort food   and infinite patience..all with the swagger of his youth.  Always making me feel nurtured and protected, even from a barrage of disease bullets. God  I love this man.

1:00 pm – Well what’s wrong with me other than the madness factor that I expected to be refused to be seen? The office staff was very nice and so was the doctor, who none-the-less said he couldn’t do anything for me. It will take another week and a half to slowly improve and I’ve gotta gut it out.  Oh, and the ice packs I’ve been doing have made the symptoms worse due to a rebound effect.

The worst part of it all, the absolute worst, was that Alph was in the examining room and I had to put a gown on and I felt so objectified, ugly, helpless, and embarrassed in front of my own husband when the doctor needed me to stand and take it down so he could see what was going on.

Why should I care, you ask?

Would you want your Hero Prince Charming to get a fast forward of your naked self under flourecent lights, which everyone knows age a woman’s body by about 20 years in the best of circumstances? Red spots bursting out of the pink blotches on your already sagging, steroid water weight skin? What if he was traumatized by the sight? What if….you know….?

How cool that after 20 years I still feel this way about him…

Autoimmune Disorder, Allergic Reaction, Help Please!!!

May 7, 2009

 

urticaria_resized

 

First, this picture is not me. I found it on google images. I WISH i looked this good…

Not good, people. Not good. I was given the drug Plaquenil to  add to my autoimmune disorder arsenal by my doctor a few weeks ago with the goal of weaning me off the prednisone.   I am now covered in a rash from hell over 75 percent of my body. EVERYWHERE  you can think of and don’t WANT to think of.  And the non specific lupus type disorder I have is gleefully helping the reaction to reach its fullest potential.

Long story short, the morning that my slowly developing rash blew into a full blown stage 3-4 allergic reaction, I also fainted and broke my ankle. So I spent the day in the ER, and was admitted. They were more worried about the fainting in case it signified something serious. It didn’t. AFter mega dollars in testing the fainting was attributed to an episode of low blood pressure.

I look like a monster. I feel like a monster. I have red, elephant ears. You can barely see any skin beneath the eruptions. My face is masked with them…Does anyone have any recommendations for excriating itching? I”m taking steroids and antihistamine but topically nothing is offering much relief except ice packs. Oatmeal bath – so so.. Coritsone cream the same…. wahhhhhh!!!!  😦

The Good News and the Bad News

April 18, 2009

 

Well, I saw my rheumatologist today. He said my blood work indicates not systemic lupus, but mixed connective tissue disease. He was quite cheery because he said it does not attack the organs like systemic lupus, so this is great news and I should be relieved. But me being me (and most of you being you) I researched it online.  

From MedicineNet:

“Mixed connective tissue disease, as first described in 1972, is “classically” considered as an “overlap” of three diseases, systemic lupus erythematosus, scleroderma, and polymyositis. Patients with this pattern illness have features of each of these three diseases. They also typically have very high quantities of antinuclear antibodies (ANAs) and antibodies to ribonucleoprotein (anti-RNP) detectable in their blood. The symptoms of many of these patients eventually evolve to become dominated by features of one of three component illnesses, most commonly scleroderma.

It is now known that overlap syndromes can occur that involve any combination of the connective tissue diseases. Therefore, for example, patients can have a combination of rheumatoid arthritis and systemic lupus erythematosus (hence, the coined name “rhupus”).”

Well woo hoo! Woo hoo!

The Life Cycle

March 23, 2009

Even as I celebrate my daughter’s pregnancy and my son’s imminent marriage, I got terrible news last night. My  favorite uncle, brother to the father I’ve been grieving on this blog, has pancreatic cancer. The very same cancer that took my father’s life. Lethal and fast moving. And, even though I wasn’t present when my father died, I now know it was a very painful death. A death my uncle witnessed.   I feel sick at heart over what he has in store for him. What he knows he has in store for him. I always imagine, no matter where my illness takes me, that the doctors would give me enough painkillers that there wouldn’t be much pain. Apparently that’s not always the case.

This is the uncle who taught me to ice skate with my  beloved twin cousins, Lenny and Joe, both already dead before their time.. He took us on wild sledding rides, the three of us screeching in terrified glee.  He taught us  to dive into our pool head first, hands properly pointed above our heads. To make a game of raking autumn  leaves and watching him set fire to them…then toasting marshmallows, carefully, his hand on our wrists to be sure we were safe. He taught the twins, already raucous,  to make practical jokes at my expense. He was the one who made noise on the roof for Santa on Christmas Eve, complete with bells for sound effects. Who truly enjoyed the company of us three little rug rats. And most importantly, who took us off the hands of our stressed out parents and provided a safety haven whenever we needed it most. 

I want to run to him and see him, its been years. I will go with my aunt, his sister,when she is over the shock and ready to plan our flight. I confess I am terrified.  It already feels so like what we went through with my father. I want to be strong and supportive but I’m afraid the similarities will curl me into a useless emotional fetal position..I keep telling myself that he’s not my father. He’s my uncle. I keep telling myself that he is 75. My father was 53.  I tell myself that we all have to die of something. As he has said, he’s had a good run.

It doesn’t help.  It doesn’t help at all. My roots are dying one by one, as nature intended. Thank God a new one is sprouting in my daughter’s womb.

Baby V

March 19, 2009

(12 week sonogram found on youtube- NOT OUR BABY!)

I cannot even begin to describe what an experience it was to see the baby on the sonogram. I stood next to my son-in-law, my daughter of course on the examining table, holding her husband’s hand, as we watched in awe. That was no flat, lifeless screen as shown in the photo on my previous post. It was like an in utero video. At twelve weeks  he was moving around, very active, and even sucking his thumb! There we were, three adults, dumbstruck.  “Oh wow!” was pretty much the extent of the conversation from all three of us while the tech did her thing. My daughter’s “oh how cute!!!!!” periodically punctuated the conversation. She, as we all did, really melted when we saw the thumb sucking. That and our repeated question “is it a boy or a girl????”   The tech kept demurring that she couldn’t be certain at twelve weeks, but finally, having found the penis, she announced “Its a boy!”

We all exclaimed in joy! My daughter was no longer carrying an “it” but a male baby. From the moment I heard it, I no longer felt merely the excitement of the pregnancy. Now he had an identity.  I felt love for him . For that tiny little guy so active inside his mom. For  Baby V, already named before his mom even got pregnant.

At twelve weeks, this baby was no future unknown. This baby was now.

And I feel so very honored that they invited me to participate in this intimate, joyous stage of their journey.  I love all three of them with all my heart.

My Future Grandchild

March 17, 2009

(An Embryo at 12 weeks- not ours)

I am so excited. I’m going with my daughter and son-in-law for the 12 week sonogram tonight. What a way to meet my grandchild! I don’t remember them back in my day… Apparently this tech has a 100% success rate reading these things for gender, but of course the 20 week one will be definitive.   I have many deep thoughts about this baby’s soon to be arrival into our family, but that will be another post for another time.  Just had to share the present thrill.  Even my own Drama Mama (thanks for that one, Amber!) is excited. She will be a great grandma, and we even have a great great grandma waiting in the wings.  More tomorrow, friends.

When I am Happiest

March 16, 2009

 

I’m happiest when I’m creating. I am totally present. It feels like God flows right through me. Peace and energy simultaneously! What could be better than that??? Pure joy! I honestly feel that both physical and spiritual healing continue to take place in me, the more I allow my creativity free reign. Poetry, jewelry designs, decoupage, photography- all of it. I’m working on a new jewelry design which i will show you later. I went to take photos of what i’ve done to show you guys but my battery was dead on my new camera 😦

Anyway, just thought I’d share a happy mood for a change.  By the way, the photo is not me but my sister and dearest friend, who shares my joy as described here…she’s an incredible mixed media artist so we are starting a business together. God I love her.

Economy Crashing Home – AGAIN

March 15, 2009

Gloria Steinem once said that the personal is political. And I fully experienced what she meant. Now, in my life, the political is becoming personal. 

At least my husband’s job is intact…for now. Maybe it was a rumor that the business would fold, but the scare certainly got our attention regarding our vulnerability in this economy . Now, two other family members are definitely being hit.  These are not rumors. Both of them had their own businesses which in another economy would have made it. Now, they’ve lost everything.  Oh I know, I know, material things are not the most important things. We all  write about our values and all the wonderful abstractions that fill our souls and are what count. We talk about the value of suffering and what we learn from it. 

But it hurts like hell to watch your loved ones go through something like this. First, their grief over their lost businesses. I know. I’ve been there.  You put your all  into it and still you have to close the doors. And then the fear. Their fear and yours. What will they do next? What is there to do next in this economy? They’re qualified for jobs… just like  the millions of other equally qualified people  who are waiting on line for interviews.

I know, health comes first. Believe me I know. But right after that comes a sense of safety and security in the world as we’ve known it.  And that, for now, is gone.

First it was physical terrorism. Now our economy crumbling.  It sure feels like another type of terrorism, doesn’t it?

Hey Guys, Remember Me?

March 4, 2009

Well…I’m back….the art show was a mixed bag…it was run very poorly and it turned out that we vendors were just another event for the retreat attendees, crammed in between seminars, massages, and various other enticing distractions…so attendance was light and we were all disappointed at that. I sold eight pieces of jewelry so I’m grateful, people really liked it, but some people didn’t even sell one thing after all the work. I felt so badly for them. My sister lugged 30 framed art pieces and sold only one small one.

But we’re not giving up, we learned a lot in terms of pricing, display, etc. and also connected with other people who gave us locations of craft shows that bring serious buyers. Also, of course, people were tight with spending due to the economy. But  I had fun and it was a rush when people actually wanted to buy something that I made!

Anyway, its taken me till now to recuperate. I slept for days afterward. That’s all for now, back to my day job 🙂  I will be catching up on all your blogs in the coming days.

Economic Crash Hits Home

February 26, 2009

Sooner or later the reality of it all had to hit. Like millions of Americans, we lost most of our retirement money in the stock market crash. We thought it had been safe in our 401K.  Even so we figured, hoped, like millions of Americans, that it would rebound. We did not panic, even though my husband is 64 years old.   We still hope so.

And our home, like mostly everyone else’s, is not worth what we paid for it four years ago. Ok, well fine, we don’t want to sell it anyway. We love our cozy little place out in the middle of nowhere, PA. We look forward to our grandkids’ visits out to the country, where we can take them fishing, have sleepouts on the screened porch, catch lightening bugs, that kind of thing.

However recently just before the crash, my husband, primary wage earner, left a very well paying, secure job, to take one closer to home, and me. And that has turned out to be a disaster. Long story short, the company restructured and let go the man who hired him.  Then the other day Alph comes home and tells me there are strong rumors, from good sources.  that the place is going to fold.  Yes, I know, a rumor is just that,  a rumor. But based upon what my husband sees of the management of the place, which he was hired to fix, the rumor seems highly credible.

With no money to draw on from our 401K  or any home equity, we are one paycheck away from no house, no security, no golden years. Luckily, he has already networked with a previous boss who is also a personal friend, and  has consulting work lined up with him for sometime next year which should turn into a full time job.

But still…  one paycheck away from public assistance.

It wasn’t supposed to be this way.  Not at our age. I grieve for the lost, false sense of economic security. Ignorance was bliss.

I Have “mild lupus IF AT ALL????”

February 17, 2009

I am stymied… I had to get a new rheumatologist (Harvard and Yale educated) for my lupus because I moved two hours from my former doctor of four years. I went to a new one very highly recommended by a dear, very intelligent friend  who is a doctor.

When I went to see him he had all my records, which he read,  but said he wanted to do his own work up  “to see if you even have lupus”. This meant a blood draw of 12 vials and a referral to a neurologist and pulmonologist. I was to call him after the blood work came in. 

I called in yesterday for the results.  The nurse checked w/him on the blood work and the reply was that the only thing of concern was my cholesterol which is off the charts and to speak to my primary about medication.
So that was IT..like the discussion was over..so i said…well, what about the lupus and a treatment plan for it and the prednisone, meds, etc?

So she went  off for quite some time to ask him  and came back and said  “the dr. said there were very minor changes and that you have very mild lupus, if that.” So I said well what about all this pain? And she replied, “Well I don’t know but that’s very good news. You know I think he just doesn’t want to say you don’t have it outright yet at this point. He wants you to decrease your prednisone from 15 mg to 10.”  Then he wants me to come in and discuss things once I see the neurologist and the pulmonologist!!!!

I know I should be happy  but.. then what IS all this weakness and pain and flares when I get an infection????????????  And what caused my stroke if I have a mild case of lupus?  

I read my previous doctor’s records which indicated I was an atypical case and had not responded to lupus medications. We had always discussed this fact. But he had never said what I found in the record, this hypothesis  that it was possibly somatization – that DREAD word meaning psychologically based symptoms-  but that he rejected that because of the history of  stroke.

So now I’m afraid I have the “hysterical woman” label even though I have these terrible symptoms and history…. Or, maybe I have something else even worse…

Your  objective thoughts.. please?

Make New Friends But…

February 12, 2009

 

 

 

 

“Make new friends but keep the old. One is silver and the other is gold.”  

I’m finding I don’t agree with that old saying.  Some of my old friends have disappointed me terribly in regard to my health issues. No support at all.  Not even polite questions about how I’m doing.  If I mention I’ve been having a hard time, they respond as if I mention the weather has really been getting to me. Yet my blog friends are here for me all the time, express genuine concern, and check in with me to see if I’m OK when I’ve been quiet for a while. 

So for me, new friends are the gold ones. Thank you, each and every one of you.

We’re Pregnant!

February 9, 2009

Ok, I know its customary for the mom and dad these days to say “we’re pregnant”, but I just have to tell you that my daughter is pregnant with my first grandchild, and it sure feels like WE’RE pregnant..(.actually just like her wedding felt like “our wedding”.)  We are just so close. She wants me in the delivery room and everything. I am just so honored about that. And even more honored that her husband wants me there.

No, he really does.

 She just got back from the doctor’s. We knew it of course from the home pregnancy test and other obvious signs, but it was nice to have him confirm that she’s healthy and they got to hear the heartbeat. She’s two months, due September 25th. 

Woohoowoohoowoohoo!!!!!!  🙂 🙂 🙂 🙂 🙂

She thinks she already looks pregnant, especially in her stomach. I don’t want to rain on her parade, she’s so excited, but truthfully, shhhh…here is what she still looks like:

To My Everlasting Shame

February 6, 2009

I did not stay at my father’s bedside, to be with  him until he passed. There he was, right upstairs in the bedroom, while I hid like a coward downstairs and out of sight. We knew it would be that night. The doctors had called the family in and said so. 

All his brothers and sisters, the aunts and uncles I grew up with,  had been pretty much staying at my parents’ house for those last weeks.  The pasta pots were always boiling. They brought Italian bread and provolone cheese and sweet salami with big green olives. Most importantly,  they brought the black humor which is our family trademark , especially during our darkest hours.  It sustained us and carried us.

And yet, there was an age regression that took place for me. At age 32, they were still the grown ups and I was like a child again. That’s just how the dynamics morphed. When it was soon to be time, my favorite aunt had a talk with me and asked me if I really wanted to watch my father die. She explained to me, 32 going on 8, that dying was not like in the movies. It was quite a frightening thing to see.  She encouraged me to have my quiet time alone with him, now in a coma, and say my good-bye. I did so. Then I walked out of the room and all his siblings and my mother went in and the door was firmly closed.

And so he died with his wife, brothers and sisters all around and me nowhere in sight. They later said it was an awful thing. Blood and God knows what everywhere. Even his brothers were shaken by it. It was not something I should have had to see, they told me. As if they had protected me from something.

But not long after, I realized it was my own father’s awful thing. I should have been there. I allowed myself to be shielded by my beloved and well meaning aunt with childlike trust.  I should have been there. I was not a child. I was not, in truth, protected or shielded. I was written out of the last line of the last page of his life.  No, we wrote me out. 

And I am so ashamed, sorry, and regretful… What if my father knew or sensed I wasn’t there, right through the invisible walls of his coma? My shame is this: that I, his oldest and most responsible child, should have  accompanied him on the final stage of his journey. I should have been there. 

No tidy ending to this post. I should have been there.  

(This post was inspired by a poem by Cordie entitled:  If I had it to do all again)

God in Action

January 31, 2009

fork-in-the-roadIn addition to the blues I’ve been experiencing lately, I also am feeling physically worse as I’ve been tapering down my prednisone. So though I did go to work yesterday, I had cancelled my attendance at bible study at my sister’s because I knew that by the time I got home at around 8 pm all I’d want to do is crawl into bed. There was no way I was up to going.

But Got had other plans for me. I was almost home after sitting for an extra hour in traffic, when I heard something in a novel I was listening to in the car.  I identified with the character, who was having a badly needed spiritual experience, and suddenly felt a powerful longing to feel the presence of God.

My sister and I live very close to each other.  There is a fork in the road in which her house is in one direction and mine in the other. As soon as I felt that longing for God, I no longer noticed my aches and pains and  without hesitation called my husband to tell him I was going to bible study after all, and called my sister to say I would be there any minute. I was right at that fork.

When I arrived my sister was radiant. She had been praying, literally, “Lord, when my sister reaches that fork in the road, please help her to feel better, and make her turn left toward my house  tonight.”

I don’t know why God wanted me there so much, but I do know that the chances of this being a coincidence were statistically ridiculous.  And  I did get to feel the presence of God and the Holy Spirit last night, we all did.  It happened when a tormented client I have suddenly came to mind, and we prayed with all our hearts for a psychological and spiritual healing for her.

God works in strange ways.

Loss: Feeling the Pain

January 28, 2009

I wrote in my  previous post, Final Words, about needing to feel the pain of loss in order to move on….well today I am feeling a loss I can’t identify…related to the present…. I know I feel it because I feel so sad, and I can feel the sadness in my chest….heavy….solid…I notice I’ve been feeling kind of angry at my body lately, how it has failed me by turning on itself and using our autoimmune system to attack it, and me. I look in the mirror and want to yell at it….WHY DID YOU DO THIS TO ME????? The research talks all about genetic markers, but I know that psychologically we can unconsciously do bad things to our bodies. I ask myself, what am I punishing myself for? Then I think maybe its not punishment, but fear causing all this in me. Fear of things I still haven’t worked through.  I also realize that at this time 25 years ago my father was dying. He died on February 5, 1984. I always get depressed at this time of year. Maybe this is all connected…I don’t know….

When I finish this post I will go to prepare for my bible study Friday night. I know that the Lord will comfort me as I read. So I have hope.

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January 24, 2009

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Lupus, UTI’s, & the 30% Club

January 17, 2009

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I wrote in a previous post that I am one of the 30% of lupus patients who have an increased frequency of UTI’s…like, VERY increased. And painful.  The only treatment plan my urologist has is for me to take low doses of macrodantin every day, indefinitely..then increase the dosage when I am actively infected…I’m wondering if anyone else is in the 30% club, and what your treatment plan is? Hopefully yours….

Lupus Rant

January 14, 2009

I know there are people who have it far worse than me. I appreciate that. But this morning I am feeling just so oppressed by the demands of my disease. I just spent an hour of my life, which I do weekly, filling my pill dispensers. In a few minutes, like it or not, I have to drive 45 minutes away to see my urologist, because I am one of the 30% of lupus patients who has a higher incidence of bladder infections than the regular population.  I am on high doses of prednisone again which make me hungry and fat. Meanwhile I’m trying to live a normal life, continue my professional career, and maintain my relationships with friends and family. Not to mention my sex life. I know I am not saying anything different than anyone else does when they feel the need to bitch about their chronic illness, but this morning its my turn. Lucky you I have to stop now, or I’ll be late for my doctor’s appointment!

Friends: Phone vs Email Time

January 12, 2009

First, let me start off by saying I am not a phone person. I just don’t like chatting on the phone. I get very impatient. That being said, I love emails and keep in touch with just about everyone that way. I think one of the reasons social email is so popular is that we can converse on our own time and schedule, sequentially rather than simultaneously.  Most of us lead such hectic lives…

So I have to prioritize. My family, I talk  to on the phone. We need to hear each other’s voices. And I think we would all agree that its nice to hear our friend’s voices once in a while! But I have had conflicts with friends who have different communication needs and want more phone time. Yet when I think of my blogger friends, I have never heard their voices yet know and feel their distinct personalities, their dreams and heartaches, and I worry about them when things are going badly for them.

I don’t know… the friends thing can be so difficult sometimes.

Lupus vs Fibromyalgia Symptoms?

December 28, 2008

You know, from what I’ve read, there is much similarity in symptoms of lupus and fibro flares.  I’ve been diagnosed with both, so I find it confusing to know which is which when I’m flaring. My doctor, quite honestly and to his integrity, I might add, also finds it to be confusing.

Would you mind  identifying your diagnosis and symptoms? I will then compile them and make a front page, unifying post out of your comments. Then you, me, and everyone else who suffers from these diseases can benefit from your input.

Thank you.