Headlines from the Lupus Foundation of America :
“Congress Reaffirms Support and Continues Funding For Lupus Research, Education and Patient Registry
Congress has again provided funding for critically important lupus research and education programs advocated by the Lupus Foundation of America. President Bush recently signed the Consolidated Security, Disaster Assistance, and Continuing Appropriations Act of 2009 (H.R. 2638). This legislation continues funding for important lupus programs, including basic, clinical and epidemiological research, and public education and awareness initiatives.
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Fluorescent Light Bulbs and People with Lupus
Some reports suggest that there may be enough UVB radiation in fluorescent light bulbs to cause photosensitivity in people with lupus. Are you one of the people affected by fluorescent light bulbs? Please share your story with us firstname.lastname@example.org.
Save the Date for Advocacy Day 2009 — March 2-3, 2009!
The Lupus Foundation of America’s 11th Annual Advocacy Day on Capitol Hill will take place March 2-3, 2009! Mark your calendars today!
In 2008, more than 300 people with lupus, their families, and health professionals visited with Members of Congress, and asked them to increase government funding for lupus medical research and to enact legislation that will greatly expand federal efforts on lupus.
Read what others had to say about Advocacy Day 2008.
Sign up to be an e-Advocate for the Lupus Foundation of America
LFA e-Advocates are an important group of lupus activists who stand ready to spring into action when called upon. Our e-Advocates will respond to legislative alerts by contacting their federal or state elected officials to educate them on issues of critical importance to people with lupus, their families and health professionals.
Sign up today.”