Do You Know How it Feels to Have Lupus?

 How would you like to be living with a disease that attacks your own  cells and organs? Things like your skin, heart, lungs, brain, joints and kidneys?  How would you like to be living with a disease in which your own body has turned on you and may eventually kill you? That would be lupus. You’ve probably heard of it, but do you know, exactly, what it is? An amazing amount of people don’t, considering it’s high incidence in our population.

The Lupus Foundation of America estimates that more than 16,000 Americans develop this disease each year, and 90% of them are women ages 15 – 45.  Lupus is a non-contagious,  autoimmune disease. Normally the body’s immune system makes proteins called antibodies, to protect the bgody against viruses, bacteria, and otehr foreign materials. These foreign materials are called anitgens.  With Lupus, the immune system cannot tell the difference between foreign substances and its own cells and tissues. So the immune system then makes antibodies directed against itself. These antibodies – acalled “auto-antibodies” cause inflammation, pain and damage in various parts of the body.

Do you want to know how it feels to have lupus?  Today I offer you an essay  link written by Christine Miserandino, a young mother with lupus : My Secret Is Safe With Me: what I wish people knew about me.   It is from the But You Don’t Look Sick website.  

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3 Responses to “Do You Know How it Feels to Have Lupus?”

  1. Bad Says:

    Lupus is a really punishing disease, and I know it well. It’s also, disappointingly, one of those diseases where little to no progress has been made insofar as treatment.

  2. anthony debartolo Says:

    there is an effective treatment for many of lupus’ symptoms – it was clinically proven 20 years ago – it’s called UVA1 phototherapy, and although it sounds counter-intuitive, it really works … i’ve been using it for several years now with great success … i put together what i know about the treatment, including all the research that backs it up, in a book called “Lupus Underground.” You can read parts of it on the book’s website – http://www.lupusunderground.com ….hope this helps…

  3. psychscribe Says:

    Thank you Anthony. If anyone with lupus out there reads this book and wishes to write a review, I will gladly post it here….maybe you have an interest, Bad?

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